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KLIK portal

At the Princess Máxima Center we think it is important to follow your development and quality of life – both during and after the treatment. We not only look at how the (medical) treatment of the disease is going, but also how you are doing in daily life.

For example, we ask questions such as: how are you feeling, how are things at school, how is your contact with friends and do you sleep well? In addition, we always ask you if you have any questions for the doctor or nursing specialist. These questions and the answers you have filled in will be discussed by the doctor during your appointment at the outpatient clinic. If you are too young to answer the questions yourself, we will ask your parent(s)/guardian(s). We ask these questions electronically via the KLIK portal.

From whom?

KLIK stands for Kwaliteit van Leven In Kaart (Quality of Life Mapped Out) and is a permanent element of our care. KLIK is there for all ages: the questions are adapted to your age and with that fitting your level of development, both during and after the treatment. Are you under 8 years old? Then we will ask your parent(s)/guardian(s) to answer the questions. From the age of 8, we will ask you the questions.

 

What is KLIK?

Once every three months, we post questions in the KLIK portal for you. You or your parent(s)/guardian(s) will be notified by email. You can then log in and answer the questions.

The questions we ask are standardized, which means that everyone answers the same questions. That way it is possible to follow your development on different topics over time. However, this also implies that there may be a question that is not or less relevant for your situation. However, it is not possible to skip a question, so if this is the case, try to answer the question either way. We are aware that this is not optimal and we are working on a solution for better coordinated questionnaires.

You will discuss your answers during the appointment with your doctor. If you have filled in KLIK more than once, you and your doctor will be able to see if anything has changed over time. What is going well? What is going not so well? Do you need support for anything? For example, you can be given guidance from the hospital school or from physiotherapy.

 

Questions in the KLIK portal for you as parent(s)/guardian(s)

Shortly after the diagnosis, we will ask you to answer a questionnaire about your family, so that based on your answers and the intake interview, the medical social worker can make a good assessment of whether and what support you need.
We also ask once every six months how you are doing. In this questionnaire you can indicate whether you need to contact someone from the psychosocial team.

 

Why not join KLIK?

The KLIK team is approaching everyone for KLIK. Have we not seen you yet and would you already like to sign up? You can do so on the KLIK website.
Need help signing up? Please feel free to contact us.


Anonymous and secure

You do not have to fill in your name on the questionnaire and only the practitioners involved in your care will be able to see your answers. The KLIK website is secure and your data will be treated confidentially. More information can be found in the KLIK privacy statement.

Research

On the basis of the data in KLIK, we can conduct research into the development and quality of life of children and parents in the Princess Máxima Center. This is important because it enables us to improve the care we offer in these areas. You can give or withhold your consent for this. Of course it does not affect your appointment with the doctor at which your answers from KLIK will be discussed. 

Are you curious about what kind of research we do into these kinds of subjects? Take a look here.

Contact details

If you have any questions, please contact the KLIK team, consisting of:

Caroline Gillen
Daniëlle van Miltenburg-Drost
Ingrid van Dopperen
Layla Teunissen

Phone 088-9729316

We can come and see you when you are at the Princess Máxima Center. If you are, ask for us at the desk on the second or third floor and we will come to you.

Vragen in het KLIK-portaal voor u als ouder(s)/verzorger(s)

Kort na de diagnose vragen we u een vragenlijst te beantwoorden over jullie gezin, zodat de medisch maatschappelijk werker op basis van uw antwoorden én het intakegesprek een goede inschatting kan maken óf en welke ondersteuning jullie nodig hebben.
Daarnaast vragen we eens in de zes maanden naar hoe het met ú gaat. In deze vragenlijst kunt u aangeven of u behoefte heeft aan contact met iemand van het psychosociaal team.


KLIK je mee?

Het KLIK-team benadert iedereen voor KLIK. Zijn we nog niet bij jullie geweest en willen jullie je wel alvast aanmelden? Dan kan dat op de KLIK-website.
Hulp nodig bij het aanmelden? Neem gerust contact met ons op.

Anoniem en veilig

Je naam hoef je niet in te vullen op de vragenlijst en alleen de behandelaren die bij jouw zorg betrokken zijn kunnen jouw antwoorden zien. De KLIK-website is daarnaast beveiligd en afgeschermd en jouw gegevens worden vertrouwelijk behandeld. Meer informatie kun je lezen in de privacyverklaring van KLIK.

Onderzoek

Op basis van de gegevens in KLIK kunnen wij ook onderzoek doen naar de ontwikkeling en kwaliteit van leven van kinderen en ouders in het Prinses Máxima Centrum. Dit is belangrijk omdat we zo de zorg die we aanbieden ook op deze terreinen kunnen verbeteren. Jullie kunnen zelf aangeven of je dit wil. Het heeft uiteraard geen effect op jullie afspraak met de dokter waarbij je de antwoorden uit KLIK bespreekt.

Ben je nieuwsgierig naar wat voor onderzoek wij doen op dit soort onderwerpen? Kijk dan hier.


Contactgegevens

Voor vragen kun je contact opnemen met het KLIK-team, bestaande uit:

Caroline Gillen
Ingrid van Dopperen
Daniëlle van Miltenburg-Drost
Layla Teunissen

Telefoon 088 972 93 16

We kunnen je ook opzoeken als je in het Prinses Máxima Centrum bent. Vraag dan naar ons bij de balie op de tweede of derde verdieping en we komen naar je/jullie toe.