KLIK stands for Kwaliteit van Leven In Kaart (Quality of Life Mapped Out) and is a permanent element of our care. KLIK is there for all ages: the questions are adapted to your age and with that fitting your level of development, both during and after the treatment. Are you under 8 years old? Then we will ask your parent(s)/guardian(s) to answer the questions. From the age of 8, we will ask you the questions.
What is KLIK?
Once every three months, we post questions in the KLIK portal for you. You or your parent(s)/guardian(s) will be notified by email. You can then log in and answer the questions.
The questions we ask are standardized, which means that everyone answers the same questions. That way it is possible to follow your development on different topics over time. However, this also implies that there may be a question that is not or less relevant for your situation. However, it is not possible to skip a question, so if this is the case, try to answer the question either way. We are aware that this is not optimal and we are working on a solution for better coordinated questionnaires.
You will discuss your answers during the appointment with your doctor. If you have filled in KLIK more than once, you and your doctor will be able to see if anything has changed over time. What is going well? What is going not so well? Do you need support for anything? For example, you can be given guidance from the hospital school or from physiotherapy.
Questions in the KLIK portal for you as parent(s)/guardian(s)
Shortly after the diagnosis, we will ask you to answer a questionnaire about your family, so that based on your answers and the intake interview, the medical social worker can make a good assessment of whether and what support you need.
We also ask once every six months how you are doing. In this questionnaire you can indicate whether you need to contact someone from the psychosocial team.
Why not join KLIK?
The KLIK team is approaching everyone for KLIK. Have we not seen you yet and would you already like to sign up? You can do so on the KLIK website.
Need help signing up? Please feel free to contact us.
Anonymous and secure
You do not have to fill in your name on the questionnaire and only the practitioners involved in your care will be able to see your answers. The KLIK website is secure and your data will be treated confidentially. More information can be found in the KLIK privacy statement.
On the basis of the data in KLIK, we can conduct research into the development and quality of life of children and parents in the Princess Máxima Center. This is important because it enables us to improve the care we offer in these areas. You can give or withhold your consent for this. Of course it does not affect your appointment with the doctor at which your answers from KLIK will be discussed.
Are you curious about what kind of research we do into these kinds of subjects? Take a look here.
If you have any questions, please contact the KLIK team, consisting of:
Ingrid van Dopperen
Désirée van Kesteren
Marloes van den Heuvel
We can come and see you when you are at the Princess Máxima Center. If you are, ask for us at the desk on the second or third floor and we will come to you.